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My crohn’s disease 6 months on…

It’s been about 6 months since my last big crohn’s drama. Being healthy for that long is huge for me!

Last time I was sick I wrote about it here. I was toxic and spent 4 days in the high-dependency unit and it took me a good month to really feel better. This was probably the sickest I had ever been. I got frightened that time. In hindsight I realise how sick I was because for the first 24 hours I had a nurse who never ever left me (not even for a second). At the time I was angry that they didn’t treat me quick enough, but I know now they weren’t even sure what was wrong…

Anyway, the 2nd most scariest time was when I had meningitis and the doctors didn’t know. That was at the end of 2011 – just after The Block. They sent me home for 24 hours before we realised I needed and ambulance and had to go back. Again that was a long recovery time… All because I had a compromised immune system due to crohn’s.

Being unwell (and not just a flu or a cough) can really wear you down. Living with a chronic illness is not fun. However, I will say I am very lucky that I CAN have moments of being well and healthy. Some people don’t have that luxury…

I’m writing this all today because when I am well I look back on those times and can’t believe I can get so sick so quickly. If you looked at me you’d have no idea.

Today I feel really good. I have been taking a drug combo that seems to be working for me. It’s still classed as a trial drug, and I am now looking at the long term effects of it. I am always happy to try anything to keep me well, but at the same time I am now worried about what it might do to me when I am an old lady… That’s something I will be researching over the coming weeks.

My husband’s cousin (who I had never met) came to see us on the weekend. He is the skipper of a very impressive luxury cruise liner for a very wealthy Australian man. He travels the world in the boat entertaining people. Oh the glamour! He is a big believer in certain foods/diets because he says people on boats always get sick. He’s been adding some things to his diet over the last 7 years and hasn’t had a sick day in all those years! He’s written some information down for me and given me some books to read… I will be looking in to it.

My mother-in-law said to me the other day “Oh, it looks like you’ve put on some weight Katrina!” At the time I got the giggles and was not sure how to take that! My husband was teasing me in the car on the way home… but I knew what she meant to say – you’re obviously not sick. And true. I’ve put on a good amount of kgs. I’m ok with that. It does mean I am healthy. It’s written all over me when I am sick because I end up skinny and drawn and wrinkly. Even though my clothes are tight now, I’d rather deal with that than deal with running to the toilet every 20 minutes, loosing sleep, not eating and everyone has to deal with my horrible moods…

Even my kids say you haven’t been sick lately Mum have you? It feels good not to be sick. It makes me what to try new things, take on more work, be more productive, get out and about. I have even enjoyed a couple of beers over the last 2 weeks! I stopped drinking after my meningitis scare in 2011, but now I feel ok to handle a beer every now and then. I didn’t stop drinking for any particular reason, but mentally I kept thinking that alcohol was going to make me sick again and I didn’t want to touch it.

I hope I haven’t jinxed myself with this story! I hope I am not sick again in a month haha! But you never know with crohn’s. For now, I’ll keep sharing my story and keep pushing on…

Have a great day! ♥ KC.

October 11, 2013

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8 Comments

  1. Reply

    Chrissie

    October 9, 2013

    Wow Katrina, you have had a rough trot with your health, Chrons must just be such a terrible illness to live with. I would be very interested in the food list you have as my husband has been battling Chronic Fatigue and digestive issues for 5 yrs. he was 98kg, now only 72kg, so anything that can assist we are always open to.

    Well done on keeping well now for 6 months, and although clothes may feel tight, that great for your health…and a good reason to go clothes shopping!!!!

    Thanks for sharing

  2. Reply

    Ness

    October 9, 2013

    It so great that you share your story. I really believe that getting more information out on any disease is paramount in getting more done about finding cures and new medications/techniques. I often think about you as u know what it is like living with a chronic illness, but as a carer
    We live on that knife edge each day, like yourself, but Unfortunately Mics condition never gets better…like you though, he is a warrior.

    Stay well, gorgeous.
    Ness xx

    • Reply

      Kl

      October 9, 2013

      So good of you to share your illness, particularly with a higher profile. I am happy that you are well but of course a chronic illness is a sneaky thing. Here’s hoping you’re on an extended ‘break’. My husband suffers from Ménière’s disease and it is very challenging. I wish you all the best with your continued research, trials and challenges. X kl

      • Reply

        Katrina

        October 10, 2013

        Thanks lovely! XX

  3. Reply

    joh

    October 9, 2013

    I have ulcerative colitis, and my 12 year old son has Crohn’s and he’s doing really well since he was diagnosed nearly two years ago. he’s on imuran and infusions of infliximab. i hope he doesn’t ever have to deal with such bad periods of illness you have experience! I hope the new meds do control yours better than in the past and you can live a seemingly ‘normal’ healthy life 🙂

    • Reply

      Katrina

      October 10, 2013

      Glad to hear he’s doing well! Thanks for coming over to my blog 🙂

  4. Reply

    A-M

    October 10, 2013

    Thank goodness! xx

  5. Reply

    Katie Tilden

    October 10, 2013

    It’s great to hear that you’re feeling well and continue to feel well Katrina. Thanks for sharing and hope you continue to feel fab. I’d never really understood what crohn’s meant so thanks for raising my awareness.

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